Friday, October 8, 2010
National ALS Registry
The United States National ALS Registry opened this month. There is an introductory page on the ALSA website, and a recorded webinar outlining the Registry can be replayed by clicking here. I believe it is the duty of each PALS to register so that finally accurate numbers can be known of the toll of ALS in the US. The oft-quoted "30,000" is a very rough estimate and in all likelihood much too few. This is an important tool too long missing from researchers' kits.
I registered yesterday. How about you?
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